.....Just after the struggles with the appliance, I had a follow up appointment with my surgeon. Remember when I said I had to record my fluid output? Well, it turns out, I was severely dehydrated. My kidneys almost shut down. Though I was drinking my fluids, it was just coming right back out. Emptying the bag got really old, real fast. Just so you know, the maximum output for a day is 1500 fl oz. I was over that almost every day. I felt like crap, but I thought it was surgery related. I ended up staying in the hospital again for five days.
We get the appliance right; I get rehydrated with a much better understanding of what I am supposed to do. We go home armed with Imodium and Lomotil to help slow things down.
Mid-March, I finally got to a point where, I could change out the appliance myself. I figured out that French fries really slow things down. We started to find some humor with the situation. I have to say this....it is very hard to be intimate when that dang bag is rustling around. If you take a plastic bag a crunch it up, it kind of sounds like that....what a turn off.😬
May 2, 2023 time for the reversal to reconnect and put everything back into its home. I will have a wound that looks like I took a bullet to the stomach. Everything inside is functioning properly. I should be able to return to work next Wednesday. There's one more minor detail. I now have to figure out why my hips and knees ache and aren't working properly.
We now have a good plan in place to stay on top of this issue. The battle is not over and with Crohn's, it never will be.
